Tuesdays with … January 5, 2015
This week’s Tuesdays with… update is a refresher and hope you find the basic info about these updates helpful. It also provides info for those who are new to LKDN.
It’s a good idea to regularly update friends and family about your need for a kidney transplant. I’ve been told that it is difficult to come up with new information to send out every week. To help, every week LKDN sends a Tuesdays with… update that includes articles and information that you could provide in your email update. You could also add information about your donor search and personal health status.
I encourage you to be consistent with your updates and the Tuesdays with… updates does just that. You’ll receive the update each Monday so that you can use it as a template for your Tuesdays with…update.
For example, if I were sending out the update it would titled: Tuesdays with Harvey. This is playing off the very popular book: Tuesdays with Morrie written by Mitch Albom.
The updates allow you to continually remind people about your situation. You never know when someone will want to learn more about the living donation process or when they might want to share your story with their social network. Many living kidney donors have learned about someone’s need from a personal or social media friend. (That is how I met my kidney donor for my second transplant.)
In addition to emailing your updates you could post this info on your Facebook page and other social media outlets.
If you are just starting try to keep your first update short. Here’s an example:
As you may know, I am in need of a kidney transplant. I found out…. (give a very brief history here. Name of disease, how long ago it started, current state of health, whether you are on dialyses or hope to avoid it.)
I am pursuing a living kidney donor for many reasons. The wait for a deceased donor kidney is about _____years in our area. Also, a kidney from a living donor lasts about twice as long as one from a deceased.
I am planning on emailing regular updates to provide you with information about my health and my campaign to find a donor. I’ve been told that it is not unusual for a friend or family member to be the person that ultimately introduces a donor to someone in need. Email and using social media which I plan to use has developed into an excellent way to let others know about my situation.
If you would like to learn more about the donation process you could go to this website. www.LKDN.org There’s a link on the left hand side “For Living Donors.” If you would like to speak to our transplant hospital we’ve been instructed to have someone call, (provide the name and phone number of the hospital and the name of the donor coordinator. You could call your coordinator to get this persons name.)
I would appreciate it if you could share this information with those that you know or post a link to my Facebook page on yours.
I am very grateful for the continued support I’m receiving from family members and friends and will continue to keep you up to date on my progress.
Click here to view previous Tuesdays with… updates.
To find out the average wait time at your transplant hospital click on the following link. First search by State in the top left side of the page, then click on “Report” for the hospital’s waiting list that you want to check. Click the pull down arrow in the “00-Summary” box and select “06 - Time to Transplant, Waitlist Patients” The table will show the average wait times at that hospital. There’s additional information about each hospital in the pull down menu.
Can you suggest another way to let others know about your need? Please share it with us by Clicking Here and we will include in in a future Tuesdays With... update.
If you know someone else in need of a kidney transplant or would like to pass this on to your doctor or a dialysis/transplant social worker please provide him or her with this link:
Until next week, we wish you the best in your journey.