Tuesdays with … June 1, 2015
Here’s your Tuesdays with…. update for those in need of a kidney transplant and their advocates. You could use the following information and email to family members, friends and post on your Facebook page and other social media outlets. You could also include additional information about your health, progress and other activities. If this is your first Tuesdays with… update, click here to learn how to use Tuesdays with… to expand on your Kidney Kampaign.
I was talking to someone who also needs a kidney transplant the other day and he told me about a conversation he had with someone who is being tested as a potential donor.
This person had been interested in being tested for quite sometime, but had many questions and didn’t know whom to ask. Months went by before he finally called the transplant hospital and they gave him the name of the donor coordinator and his questions were answered.
I’ve discovered that this is not an unusual situation. That many potential donors have questions about the donation process and don’t know whom to ask. This person didn’t ask his friend because he didn’t want to disappoint his friend if he wasn’t able to be a donor or he decided not to donate. The transplant hospitals tell the potential donor that they could always decide not to donate.
Would you like to learn more about what it takes to be a donor? If this is the case, you could call the donor coordinator at my hospital. (You could give this person’s name and phone number.)
An organization I found that’s been helping me is the Living Kidney Donors Network. www.LKDN.org This non-profit was started by Harvey Mysel, a 2-time kidney transplant recipient. Their website has information about being a donor. Also, Harvey has helped 100’s of people through the transplant process, both those in need and those who have donated. He has offered to speak to anyone that has questions. You could reach Harvey at: harvey@LKDN.org or 312-473-3772
If you’ve let others know about my situation, this would be good information to pass along to them.
(You could also provide some info about your health, dialysis, your energy level, something you and your family are doing together or an experience you’ve had at the transplant hospital.)
I am very grateful for the continued support I’m receiving from family members and friends and will continue to keep you up to date on my progress.
Can you suggest another way to let others know about your need? Please share it with us by clicking here and we will include it in a future Tuesdays With... update.
If you know someone else in need of a kidney transplant or would like to pass this on to your doctor or a dialysis/transplant social worker please provide him or her with this link:
Until next week, we wish you the best in your journey.