Tuesdays with … August 31, 2014
Here’s your Tuesdays with…. update for those in need of a kidney transplant and their advocates. It is a short one this week. You could use the following information and email to family members, friends and post on your Facebook page and other social media outlets. You could also include additional information about your health, progress and other activities. If this is your first Tuesdays with… update, click here to learn how to use Tuesdays with… to expand on your Kidney Kampaign.
There are 100,000 people on the kidney transplant waiting list. I’m registered at (you fill in the name of your hospital,) where the wait for a deceased donor kidney is X years. (You fill in this number. See below for how you find out what the wait is at your hospital.)
As you know, I’m actively pursuing a living kidney donor. There are many benefits from a living donor versus one from a deceased donor. Most importantly is that you don’t have to wait for a transplant. (If you are on dialysis you could mention that being on dialysis negatively impacts your long term health. If you aren’t on dialysis you could mention that you would like to avoid being on dialysis.) And a kidney from a living donor lasts on average twice as long as one from a deceased donor.
I’ve been helped by an organization, the Living Kidney Donors Network. Their Founder, Harvey Mysel is a two-time kidney transplant recipient. Harvey has helped explain the donor process to many people. If you have questions, he is willing to answer them via email or to speak with you. You could contact Harvey at: harvey@LKDN.org
I am very grateful for the continued support I’m receiving from family members and friends and will continue to keep you up to date on my progress.
(You could also provide some info about your health, dialysis, your energy level, something you and your family are doing together or an experience you’ve had at the transplant hospital.)
This link will take you to a site that lists ALL transplant centers and their wait times. If a deceased donor kidney is an option you want to explore, then you should look through this list to see if there’s a transplant center near you that has a shorter waiting time. One of the shorter wait times is the University of Wisconsin in Madison. If you find others with similar short wait times please pass it along to me and I’ll include it in a future Tuesdays update. To find your transplant center search by State, top left on the page and then by center. Select the "New Format" under the "View Report" column, the information you are looking for will be on page #11.
Can you suggest another way to let others know about your need? Please share it with us by Clicking Here and we will include in in a future Tuesdays With... update.
If you know someone else in need of a kidney transplant or would like to pass this on to your doctor or a dialysis/transplant social worker please provide him or her with this link:
Until next week, we wish you the best in your journey.