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Tuesdays with … October 20, 2014

Here’s your Tuesdays with…. update for those in need of a kidney transplant and their advocates. It is a short one this week. You could use the following information and email to family members, friends and post on your Facebook page and other social media outlets. You could also include additional information about your health, progress and other activities. If this is your first Tuesdays with… update, click here to learn how to use Tuesdays with… to expand on your Kidney Kampaign.

Many people ask me questions about living kidney donation. How does one become a living kidney donor? What is the process of becoming a living donor? Here are some of the most common questions asked with their respective answers.

Question: Why is a kidney transplant from a living donor better than one from a deceased donor?
Answer: A kidney from a living donor lasts on average twice as long as one from a deceased donor. Plus, with a living donor it’s more likely you can avoid being on kidney dialysis.
Question: What does it take to be a kidney donor?
Answer: A living kidney donor is usually between ages 18 to 65 and in excellent health. Recently, many in their 70’s have donated and even some in their 80’s. It’s the health of the donor and not necessarily their age. 

Question: What might rule out someone as a kidney donor?
Answer: A history of heart disease, chronic lung or liver disease, kidney disease, hypertension, diabetes, cancer and/or untreated psychiatric disease will rule out that candidate. Smoking, obesity and other health issues are considered on an individual basis. There isn’t a national standard for evaluating donors so if one hospital says you are not a candidate, another might allow you to donate.

Question: What does kidney transplant surgery involve?
Answer: The surgical procedure to remove a kidney from the donor is called a donor nephrectomy and takes approximately 2-3 hours, but could take longer. Surgeons primarily use a minimally invasive technique by using 2 or 3 small incisions to insert instruments and an incision  of 3-4 inches in length to remove the donor's kidney. Typically donors spend 2-3 days in recovery before being discharged from the hospital but some will only be in the hospital for one day.

Question: What risks are there to kidney donors?
Answer: Once a living donor candidate has been completely evaluated and cleared, the chance of the donation affecting his/her lifespan or lifestyle is extremely low. However, with any major surgery and it is a major surgical procedure when using anesthesia there are risks. Nationally, the risk of having a life-threatening problem with donating a kidney is 1 in 3,000. The risk of minor complications such as a minor wound infection is about 2-4%.

Question: What is recovery like?
Answer:  Since the kidney donor operation is a major surgical procedure, donors find they have less energy and need about 4-6 weeks to return to their full pre-surgical activity level. For donors who work in an office they can usually return to work in 2-3 weeks. For donors whose job requires physical labor, it can take 4-6 weeks or longer before they could return to work.

Question: Who pays for a donor's medical costs?
Answer: All expenses for the medical work-up and transplant surgery are covered by the recipient's health insurance. In considering donation, candidates need to consider additional expenses such as:
• Travel to your recipients transplant center.
• Parking, lodging, gas, bridge tolls and other incidentals.
• Lost wages if sick time, vacation or short-term disability from work is not available.
The financial coordinator and social workers can discuss your specific circumstances in more detail.

Question: What is the long-term outcome for kidney donors?
Answer: The New England Journal of Medicine and Journal of the American Medical Association published long-term studies in 2009 and 2010 analyzing outcomes of kidney donors. One study followed 80,000 live kidney donors dating back to 1994, while the other studied 3,698 individuals who donated a kidney between 1963 and 2007. Results showed:
• Donor survival was similar to that of the general control population (people who had not had a kidney removed) matched for age, sex, and race or ethnic group.
• The rate of end-stage renal disease (ESRD) was significantly lower in the group of patients who donated a kidney than the rate in the general population (180 versus 268 per million per year).
• After donating one kidney (removing 50 percent of the functioning kidney mass), the remaining normal kidney compensates and the overall kidney function (measured in GFR, or glomerular filtration rate) increases to approximately 70 percent of baseline at about two weeks and approximately 75 to 85 percent of baseline at long-term follow-up.

Question: Can a female donor have children after donating a kidney?
Answer: Women of childbearing age can have children after kidney donation because the donor surgery does not affect their reproductive organs. 

Question: Does a donor need follow-up medical care after donation?
Answer: The Health Resources & Services Administration (HRSA) now requires transplant hospitals to follow up with kidney donors at regular intervals (6 months, 1 year and 2 years). Many hospitals have expanded this to include a 1 week, 2 weeks and a 3 month checkup. The costs of the checkups are fully covered, and there is NO cost to the donor. After 2 years, you should continue to have at least a yearly checkup with your primary care physician.  

Hopefully these questions and answers gave you a better understanding of what it is like to become a living kidney donor. If you have any other questions, please let me know. Also, you can visit Living Kidney Donors Network at as they have valuable, detailed information to assist you in learning more.

(You could also provide some info about your health, dialysis, your energy level, something you and your family are doing together or an experience you’ve had at the transplant hospital.)

I am very grateful for the continued support I’m receiving from family members and friends and will continue to keep you up to date on my progress.

You could get business cards printed at FedEx/Kinkos online or at their store. There are many online services that print inexpensive cards: Vista Print and Staples are just a few.

Can you suggest another way to let others know about your need? Please share it with us by Clicking Here and we will include in in a future Tuesdays With... update.

If you know someone else in need of a kidney transplant or would like to pass this on to your doctor or a dialysis/transplant social worker please provide him or her with this link:

Until next week, we wish you the best in your journey.

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Harvey Mysel, Founder & President

Harvey established the LKDN after recognizing the need for better resources while pursuing a successful living kidney transplant in 2006. Our purpose is to share knowledge and build the confidence to enable the life changing benefits of living donation. Click here to learn more about Harvey.

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