Harvey Mysel, Founder – Living Kidney Donors Network (LKDN)

The LKDN is a non-profit 501(c)3 established in 2007 to educate people in need of a kidney transplant about living kidney donation and help them communicate their need to family members and friends. 

Harvey is a two-time kidney transplant recipient. After proactively managing an inherited kidney condition, PKD (Polycystic Kidney Disease) for over 20 years he had his first kidney transplant in February 2007. He was fortunate that his wife, Amy, was a compatible donor. Harvey contracted a rare virus, (BK Virus,) and in August 2012 had his second kidney transplant. He and his donor, Stephen Liegghio, who was introduced to Harvey by a mutual acquaintance, were involved in a 3-way kidney paired exchange.

Here are some of the programs that Harvey has facilitated since starting the LKDN:

  • Harvey moderates the LKDN Workshops & Webinars, “Having Your Donor Find You.” Over 1,500 people participated in these programs in Chicago, Milwaukee, Houston, Michigan, California, Arizona and Boston.
  • Harvey developed the free online program Having Your Donor Find YOU! to provide easy access for patients and to help them have a successful living kidney transplant experience.
  • Facilitated patient workshop and trained the transplant alumni at St. Luke's Cooley Transplant Center in Houston so they could facilitate future workshops.
  • Guest speaker for TRIO Leadership Summit 2011 – Presentation, “Following Your Passion, Making a Difference, One Life at a Time.”
  • Guest speak at the North Shore United Methodist Church adult form discussing Living Kidney Donation and explaining how one non-directed kidney donor can save the lives of many people.
  • Facilitated a training program for Beaumont Hospital’s peer mentors, social workers and nurses on how to present the living donation option to patients.
  • Since 2007 the National Kidney Foundation of Illinois has invited Harvey to speak about living donation during their “Preparing for Transplantation” seminars.
  • Presented “Making a Difference in Living Kidney Transplantation” to The Society of Transplant Social Workers at their Annual Conference. Those attending received CE credits.
  • Fresenius and DaVita invited Harvey to present his training program to over 100 social workers.
  • Guest panelist with Dr. John Friedewald & Dr. Joseph Leventhal of Northwestern Memorial Hospital on the WTTW “Chicago Tonight,” a PBS station to discuss the recent changes in living kidney transplantation.
  • A PKD Foundation National Convention invitation since 2008 to be a guest speaker and moderator for their Living Donation Program.
  • Wrote the cover story for the January 2010 issue of the AAKP, (American Association of Kidney Patients,) magazine Renalife, “It’s About Your Donor Finding You!”
  • UNOS, (United Network for Organ Sharing) invited Harvey to give a presentation to their Transplant Coordinators Committee Meeting on Living Kidney Donation.
  • Contributor for the PKD Foundation “Progress” magazine in the “Ask The Experts” column.

In addition to the work he does at the LKDN, Harvey is a tri-athlete, competing in a triathlon 5 months after his transplant. He’s won 3 Gold and 2 Sivler Medals during multiple Transplant Games. Harvey is a bicycle rider, tennis and platform tennis player, bowler, hiker and rock climber.

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Harvey
Harvey Mysel, Founder & President

Harvey established the LKDN after recognizing the need for better resources while pursuing a successful living kidney transplant in 2006. Our purpose is to share knowledge and build the confidence to enable the life changing benefits of living donation. Click here to learn more about Harvey.

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